Desecrating the Sanctuary

In Still Alice there is a scene where Alice, who has early onset Alzheimer’s, is unable to find the bathroom in her own home and no longer able to contain herself, pees in her pants. She is mortified and is sobbing as her husband changes her. Before I continue this story, I will tell you …

Midnight Snack

  Woke up to this in my previously clean kitchen. Apparently “someone” felt like a raw sweet potato and cheese sandwich in the middle of the night. The peels were safely stored in the “door open all night” fridge, in a neat foil package.

Sound of Silence

I miss conversation. I miss planning. I miss humor. I miss looking forward to things with him.  I miss him knowing things that we experienced together. Like the used car salesman that lent us a mini so I could take my drivers license cause I couldn’t parallel park and it was the smallest car possible. …

This is Agitation

Video This is agitation. He is anxious and can’t stop moving, fiddling and fidgeting. His breathing is fast and he cannot relax. Reminds me of when I’m at the airport going on a trip, terrified I’ve forgotten my passport, visa, something that will derail my plans. It’s hard to distract and redirect at this point; …

Rocky Path

  So as we negotiate this rocky path, I am finding myself befuddled and tearful. I feel like I have a tight fist around my heart. I believe strongly that we are on the right path and that I have made good decisions, but there is a jarring discordance. I came to the realization that …

Skullduggery afoot

While yesterday was beatific, today skullduggery is afoot. No amount of redirection could convince my love that thieves were not waiting in the wings poised to nab his wallet, padfolio, watch, video camera bag etc the minute his back was turned. We even completed our morning ablutions (thank you @janetabor4 ) with the wallet in hand. We …

Grooming Part II

When someone in your church family doesn’t trust you around your husband’s neck with a razor. Cough @janetabor4 cough! #sograteful

Misery loves company

That same someone “forced” her husband to go for a drive down PCH on a Sunday afternoon. Clearly both were utterly miserable. @janetabor4 #miserylovescompany #corvettelovers #thankyousuperman

Beatific

Cara came today! Her basic philosophy is that we should stay ahead of the symptoms as much as possible vs waiting for them to escalate before treating. Proactive vs reactive. Beatific vs. agitated. His face and his whole stance changes as the meds wear off. I feel such relief. I have a whole team with …

Grooming

As long as I have known Rob, he has been impeccably groomed. He would shower once, sometimes twice a day and always smelled amazing. Of late, I have been assisting with grooming, but more in the realm of “Hey let’s go shower” and “let me wash your back” or “you still have soap in your …