Nighttime Rituals

Nighttime Rituals Night time rituals — When planning ones sleepy time it is crucial to plan for all and any eventualities. Will one need to hike perhaps? Shoe choice is critical. Will one need a little cash? Wallets one, two or three offer many options and finally one must have a phone in hand in …

Ghost

He’s like a ghost. A shimmery, see through version of the vibrant, aliveness that he once was. He watches and looks from the outside, silent and yearning, desperately wanting to be included but unable to cross the Alzheimer’s abyss between then and now. #alzheimerssucks #illbethebridge #earlyonsetalzheimers

Yoga time

What’s better than doing yoga on a Saturday morning? Doing yoga with @jakesattin on a Saturday morning!

Hovering is downright bothering

A while back I wrote that “lurking was disconcerting”. Today I’m here to tell you that hovering is downright bothering! For this reason, among others, I have commenced learning the books of the Bible. I am not permitted to pick up the sharp, pointy stick until I have chanted all 66 books and am usually …

We’re famous

Well he is anyway; I’ll just ride his coattails. We got the official diagnosis Feb 14, 2017 and are coming up to our 5th anniversary of dancing with this devil. The Alzheimer’s association has been such a great source of support and education for us. It is an honor to feature on their New Year …

Making Hay while the sun shines

I have decided that if I am to be shadowed constantly, that I should be able to benefit from this behavior. I was in need of a porter/bodyguard/photographer when I attended trade shows and I think the other attendees were a little jealous honestly #earlyonsetalzheimers #alzheimerbenefits #shadowhay

Hidden maladies

Hidden maladies Last night was tough; R leapt out of bed every half hour or so wandered around and then leapt back in. I do not use the word leapt lightly. Fortunately for him I had spent a solid 3 mins googling akathisia and so was somewhat sympathetic. 5.30am came around all too quickly and …

Akathiesia

Akathiesia A feeling of muscle quivering, restlessness, and inability to sit still, sometimes a side effect of antipsychotic or antidepressant medication. What a jumble we have to work through. We have symptoms of Alzheimer’s which we try to manage with drugs that can have side effects that are typical in Alzheimers. The Seroquel has been …

Honor list

I was listening to a podcast this morning, on our way to our quarterly neurologist appointment, and they talked about an honor list for your spouse that you are to make while you love them and review, but not edit, when you are not feeling those warm fuzzies. I thought I would challenge you to …