Life giving vs life draining

I remember shortly after our second was born, we left the boys with Rob’s sister and rushed off to a fancy schmancy hotel for a night of adulting! Fine dining and passion were on the menu and we thought we would just take a wee nap before commencing. We woke up the next morning!!! It …

One potato, two potato

One potato, two potato, three potato, four! There is no arguing / discussing with Alzheimer’s. If the potatoes are on the bar top then they must belong there. What preceded that was a tantrum triggered by a helping hand misconstrued as a “threat”? It’s not easy to understand his reality but we try not to …

Choose Happy

Choose happy! Today I got signed up to be an “in home support services” caregiver. A social worker will come out and evaluate how many hours are spent caregiving so I can get some help from the state. This will ease the financial burden for sure which is a huge part of this Alzheimer’s conundrum. …

Subliminal Messages

Subliminal Messages Subliminal messages are words or images presented below our conscious awareness. When sending such a message to your wife returning from yoga, she might think that you were off to work. (The pad folio cunningly tucked under the arm) Of course, you would not go to work in sneakers so her next thought …

Nighttime Rituals

Nighttime Rituals Night time rituals — When planning ones sleepy time it is crucial to plan for all and any eventualities. Will one need to hike perhaps? Shoe choice is critical. Will one need a little cash? Wallets one, two or three offer many options and finally one must have a phone in hand in …

Ghost

He’s like a ghost. A shimmery, see through version of the vibrant, aliveness that he once was. He watches and looks from the outside, silent and yearning, desperately wanting to be included but unable to cross the Alzheimer’s abyss between then and now. #alzheimerssucks #illbethebridge #earlyonsetalzheimers

We’re famous

Well he is anyway; I’ll just ride his coattails. We got the official diagnosis Feb 14, 2017 and are coming up to our 5th anniversary of dancing with this devil. The Alzheimer’s association has been such a great source of support and education for us. It is an honor to feature on their New Year …

Making Hay while the sun shines

I have decided that if I am to be shadowed constantly, that I should be able to benefit from this behavior. I was in need of a porter/bodyguard/photographer when I attended trade shows and I think the other attendees were a little jealous honestly #earlyonsetalzheimers #alzheimerbenefits #shadowhay

Vegas Baby

What a day and night! I forgot who this Lesley was. Connecting with old friends, vendors, music, laughter and much frivolity ending with a yoga pose I like to call “I put my key card in my boot cause I didn’t have a pocket and I couldn’t retrieve it to open the door” (yes it …

Maintaining the Upper Hand

In order to maintain the upper hand in a relationship, one must sometimes resort to cunning tactics. For example, one could feign indifference when one’s wife returns like a thief in the night from a “business trip” and wait until she is safely at a networking meeting and then go walkabout. The tricky part is …