Meds are keeping the agitation and hopefully seizures at bay. He is restless though and drifts through the house leaving a swathe of evidence of his passing. I came home from yoga today to find the garage door half up and my Monkey Joe doormat placed vertically to welcome me. I have suspended a …
I woke this morning in tears, the weight of another day like yesterday just too much to bear. I wanted to go to church and we had been invited to Jake’s gf’s family for lunch and I just wasn’t sure I had the necessary wrangling power. Our angel Cara texted in the midst of my …
Read more “Who would have known it was the last time we would attend church together?”
Rob went to bed on Wednesday evening and after the seizure at 5am Thursday slept till Friday morning. Our new normals are bed rails and naps in the prayer chair, trusty hounds always close. For some reason R has taken great issue with the rail. He shakes it as if imprisoned by it, which he …
So 5am this morning R had a massive grand mal seizure. It lasted over a minute, and was followed by a long period of time during which he couldn’t catch his breath. He was trying to drag air into his lungs, kind of like when you get the wind knocked out of you. It was …
Yesterday “someone” sat at the helm of Monkey Joe Speak and tampered with the system. I suspect the chair was too soft, the computer too hard but the paperwork was “just right” and that same someone took said paperwork and set up an elaborate mystery puzzle that I was tasked with unraveling upon my …
I don’t even know how to describe today. The best part was a big family hug. Ever since I started dating Rob, we have done Monday night family dinners. It used to be at Rob’s parents and it was and is a night I love and look forward to each week. It was there I …
So today I got a taste of my mother in law’s life when her son was a toddler. Honestly I am surprised that she had the stamina to have a second child. I had always heard stories about what a handful Rob was, fortunately Jake’s genes were tempered by the hearty Strauss ones, because …
So Rob has entered yet another “phase” where he is not recognizing food “norms”. The raw sweet potato sandwich and the bead swallowing were the beginning. He will pour his drink onto his plate, add yogurt to the peanut butter jar and just today he made himself a cat food and cheese sandwich. Fortunately Nonna …
Huge thank you to Beth Peters for this gorgeous prayer quilt. The ladies at her church make these quilts and as each knot is tied, say a prayer for the recipient. She told me a story of a family member who had a very premature baby. The doctors called the family to say goodbye to the little …
Today was bloody awful! The agitation and compulsive pacing and packing started at 6am and by 5pm my emotional and medical tool boxes were both empty! The meds were as effective as tic tacs, except for the Xanax I took; that worked quite well. Dr. April popped in and more tweaks for tomorrow. Highlight of …