This is Agitation

Video This is agitation. He is anxious and can’t stop moving, fiddling and fidgeting. His breathing is fast and he cannot relax. Reminds me of when I’m at the airport going on a trip, terrified I’ve forgotten my passport, visa, something that will derail my plans. It’s hard to distract and redirect at this point; …

Rocky Path

  So as we negotiate this rocky path, I am finding myself befuddled and tearful. I feel like I have a tight fist around my heart. I believe strongly that we are on the right path and that I have made good decisions, but there is a jarring discordance. I came to the realization that …

Skullduggery afoot

While yesterday was beatific, today skullduggery is afoot. No amount of redirection could convince my love that thieves were not waiting in the wings poised to nab his wallet, padfolio, watch, video camera bag etc the minute his back was turned. We even completed our morning ablutions (thank you @janetabor4 ) with the wallet in hand. We …

Beatific

Cara came today! Her basic philosophy is that we should stay ahead of the symptoms as much as possible vs waiting for them to escalate before treating. Proactive vs reactive. Beatific vs. agitated. His face and his whole stance changes as the meds wear off. I feel such relief. I have a whole team with …

Naptime

So Cara, our assigned hospice nurse came over yesterday. A wonderful friend who runs a board and care facility and facilitates an early onset Alzheimer’s support group I belong to, recommended Cara and after one phone call, I could already see why. Finally there is someone speaking my language. She asked what our goals and …

Hospice?

When I first noticed something wrong with Rob, it was like trying to catch mist. It was there and then it wasn’t and he denied so vehemently, that I doubted my own perception. As things progressed, I looked for every excuse and all the while pursued the diagnosis with the tenacity of a bulldog. Confirmation …

Where is he?

I sit across from him and he is completely absorbed in his cameras. He opens and closes the bag, jumps up and “photographs” the dog and goes back to fiddle some more. The camera has no battery but it doesn’t seem to matter. He will look up and gaze into the distance; I have no …

McGyver no more

  We used to call Rob, “McGyver” because he could always make a plan. If I wanted to go on a trip, Rob would sell a bunch of scrap metal and off we would go. If something needed fixing, Rob was your man. His superpower was figuring out problems at which others had failed. I …

Imagine

  Imagine waking up and finding a stranger in your bed…. There are many stories that have perhaps ended this way, but today’s starts with said offender not only in his bed, but draped over him and insisting he stay for just a few more minutes pleeeease. Finally he’s had enough and gets up horrified …