Speeding up

  Feel like we are speeding up Each day is marked by another loss – yesterday I couldn’t get him to lie backwards in the bath to rinse his hair- he just couldn’t understand what I wanted Today he’s wearing two pairs of undies, one pair of jeans with two belts Two tees one inside …

5 year anniversary celebration — Happy Valentine’s Day

 

We have made it 5 years in our dance with the devil that is Alzheimers. Five years since our lives were torn apart and everything we knew collapsed. There are so many shadow gifts, the most precious of all being time. We have had time to adjust, to learn and to grow. My sister in law once said that she would only rest when she knew that if something happened to her, that her daughter would be OK. I don’t believe we would have reached that point without this diagnosis. Ben, Jake and I will all be OK without the rock that was Rob. We will walk him home with dignity and grace and then we will be OK. Devastated, sad, gutted, distraught, but OK. In honor of our journey and perhaps as a roadmap for others passing this way, I have created this blog. Today the Alzheimer’s association, who has supported us tremendously, has released a Valentine story on our journey on their blog, so call this a blog within a blog!  here

 

 

 

BFF #friendsforever

When your BFF is your voice of reason and takes you to the beach to walk it off! Deb has a special place in her heart for Rob. She has always seen through his BS and into the softness inside. They even share a birthday and every year R exclaims “What?? It’s your bday too?”

The brink of madness

  This is the look of a man who has taken his wife to the brink of madness and then reeled her back in! Today R woke up super suspicious and it went downhill from there. I decided to take him on a walk with my aunt who drove up from Dana point since I …

Man with a plan

A man with a plan? Yesterday was a tough one. R was extra, super squirrelly and unable to settle to any task. Even @allieay6 Allie and little Isla could not deter him from his mission to monitor his muse. (that’s me) Finally it was time to go to Jake’s birthday party but not before he consulted …

Expected Death

Read this today and it really resonated…   When someone dies, the first thing to do is nothing. Don’t run out and call the nurse. Don’t pick up the phone. Take a deep breath and be present to the magnitude of the moment.   There’s a grace to being at the bedside of someone you …

I can’t do this

When the boys were 2-1/2 and 6 months I remember going to the grocery store; Jake was in his car seat and Ben standing in the cart. It was immediately apparent that this was not going to go smoothly. Ben wanted to walk and Jake was getting cranky. A South African lady about my mom’s …

Disassociation

I’ve been feeling somewhat disassociated as some kind of defense mechanism I guess as hints of stage 7, the finale, manifest

Yoga time

What’s better than doing yoga on a Saturday morning? Doing yoga with @jakesattin on a Saturday morning!