So the whole of last week was super chill
Rob was back to being beatific and I was seriously wondering if hospice was premature now that we had the meds dialed in. This morning we got up same as usual, he was completely “normal”.
I set him up to shave and shower, got him started and went to take the doggies out. When I returned, he was lying in the fetal position on the bathroom rug. I honestly thought he was just doing one of his weird Alzheimer things and told him to get up and finish shaving. He was non responsive and I noticed vomit next to him. My heart dropped and I shook him but he didn’t respond. He was breathing somewhat erratically but literally looked like he was just taking a nap. Hospice told me to call 911 for a non emergency assist and they were there in a flash. By this time he was trying to get up but super wobbly and completely zoned out. He checked out fine with blood pressure, glucose, heart etc. and they surmised that he had fainted. Normally he would have been taken to the ER for further evaluation but not in a hospice situation. The hospice nurse arrived soon after and he is now sleeping thanks to some meds from my special tool box. The disease has affecting his thinking up till recently and is now starting to have physical manifestations. There is no roadmap to what will go when or how but I am so grateful to have hospice alongside for guidance. Had this happened pre-hospice, we would have faced an emergency room visit I would not have had the confidence to refuse, and that would have been a really scary, possibly dangerous endeavor. I am sitting next to him typing this and he is sleeping peacefully with his doggies glued to his side, all the while this rat-relentless disease is nibbling away at his psyche.
Lesley, my heart bleeds for you.
It’s a horrible disease for sure